Characteristics of cohorts in the Childhood Cancer Research Group at the Danish Cancer Society’s Research Center
Cohort name (acronym) Adult Life after Childhood Cancer in Scandinavia - ALiCCS Main focus areas Somatic late effects in all organs and organ systems after
treatment for childhood cancer Source of identification of
study population
Nordic cancer registries and central population registries
Study population 33,160 1-year survivors of childhood cancer from Denmark, Finland, Iceland, Norway and Sweden diagnosed at age 0- 19 years between 1943-2008 and five as many randomly selected population comparisons individually matched Design and data collection
Study design Cohort and case-cohort studies
Setting Population-based
Data sources (yes/no)
Registers Yes
Medical records Yes
Questionnaires No
Interviews No
Physical examinations No Bio samples (if yes,
specify)
No
Other tests No
Website and/or contact person and link to cohort design paper
www.aliccs.org
Jeanette Falck Winther, jeanette@cancer.dk
https://onlinelibrary.wiley.com/doi/full/10.1002/pbc.25661